Things to Do

BEFORE TREATMENT:
  • Discuss every aspect of your treatment with your doctor. Make certain they answer every question and calm every concern. Ask for references, statistics, outcomes, etc.
  • Study every choice or alternative treatment that may be available.
  • Test for DPD Deficiency? Currently, this is entirely up to you to research and decide given all the information you gather.
  • DO NOT RUSH! Sounds impossible but its one thing I very much regret throughout Cheryl’s ordeals. Being and feeling rushed was very common.
  • If you are uncomfortable with any step, seek second opinions.
  • Decide your treatment procedure.

POST TREATMENT WITH TOXICITY
  • Gather any information your doctor provides.
  • Get all procedures and toxicity policy information from your oncology center
  • Learn your insurance provider’s history and policies regarding toxicity treatment
  • Report the experience to your State Medical Board or equivalent
  • Report the event to the FDA (their link is listed on our page)
  • Seek legal advice always Commonly there is no legal recourse because testing is not in the standard of care but there may be overdose or procedural issues that merit attention
  • Contact any and all media to raise awareness
  • Publicize the experience as much and as far as your privacy concerns allow. This cycle must be broken and as long as patients and families remain silent, it will continue. Help yourself, help others.